REFLECTION. Eczema and steroid withdrawal.

I never knew what eczema was really like, my daughter had a few little spots in the creases of her arms and legs when she was young. I took her down to the chemist and they gave me some cortisone which cleared it up. Only reappearing once or twice a year. This is what I thought eczema was and how it was for everyone. 
Boy was I wrong!!!
Now I know the real struggle, the horrible crazy itchy monster that eczema is and I hate it. It takes over your body, your life, your day, your night, your wallet, the list could go on and on.
I feel such heart ache for anyone that is struggling with eczema, If you are I hope you can get through the other side soon. I know for sure that I could never cope with the pain and itch of what Lakyn has in his little life and no one could know what it's truly like unless they go through it themselves.
Before we decided to stop steroids and put him through the steroid withdrawal process, from a few months old we were constantly applying steroids. When we stopped the eczema would return, worse and often in a new spot, spreading slowing.
Doctors would say we were not using enough, telling us to use more. We just knew it wasn't the answer for us. When we spoke to doctors about stopping certain foods they told us they did not advise us to do so. Confusing us and making us question what we had learned whilst researching ourselves.
Lakyn developed asthma and the doctors said this was normal for children who have eczema. I hated the fact I couldn't help him. We saw a naturopath who told us using steroids to treat eczema would only cover up the problem therefore wreaking havoc on other organs resulting in things like asthma. It made so much sense, yet made me so mad that doctors would just cover up the problem with a drug. (Now I know, its not their fault as this is all they know and what they are taught).
We decided to listen to our gut, he was getting worse and we had to try and help him. We decided to stop steroids, we were scared, we had read about others who were going through or had been through the withdrawal process and it looked so horrible, they looked like they were in so much pain and were extremely itchy.
Doctors didn't agree with what we were doing, family and friends thought we were a little crazy. We did it anyway.
For months he was up every night for a good four hours with uncontrollable itchy flares. I would often cry with him and prey for a miracle, while little tears ran down his face. Nothing would stop his itch. He wore mits during the day whenever he would scratch, in the car, and all night.  
As the months went by the itching became less intense, I could walk him and rock him or stroke him but if I stopped he would scratch. There were nights I would be doing this until my alarm went off for work. I soon gave up my job as it was all too much. I don't know how we coped to be honest.
The hardest part for me was not being able to help him, its so hard to watch your child suffer. Looking at him now we forget how bad he really was, until we look at a photo and it all comes back. Lakyn is such a trooper, he is now such a different, happy and much less itchy boy. It was the hardest thing we as a family have had to endure, I feel good knowing we were there for him every step of the way.
There were times I felt like I couldn't cope, going through strong times and bad times. I looking forward to the day I wake up and realise we have both slept all night, he still wakes up every night and he is nearly six. Although now he just jumps into bed with me and goes back to sleep.
Ali xx
 

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